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This article has been cited by other articles in PMC. Abstract Objective In a study conducted in New Brunswick and Newfoundland and Labrador, we examined the economic impact on families caring for a child with cancer.
Methods We undertook semi-structured interviews with 28 French and English families with a child diagnosed with cancer in the last 10 years. Results Families who care for a child with cancer incur considerable costs during the diagnostic, treatment, and follow-up care phases of the disease.
Four major themes emerged from this qualitative study as contributing factors for these expenses: In addition, many of the decisions with regard to the primary caregiver were gendered.
Conclusions For families with children diagnosed with cancer, financial issues emerged as a significant concern at a time when these families were already consumed with other challenges. This economic burden can have long-term effects on the financial security, quality of life, and future well-being of the entire family, including the siblings of the affected child, but in particular the mother.
Financial assistance programs for families of seriously ill children need to be revisited and expanded. Childhood cancer, economic effects, qualitative study, effects on work, travel expenses, out-of-pocket expenses 1.
Although childhood cancer is rare, it is nevertheless the most common disease-related cause of death among children. Fortunately, the survival rate for children with cancer has increased dramatically since the late s. Understandably, the psychological, sociologic, and financial effects of the disease can be extremely stressful for families 2.
Few studies have been conducted to document these issues, particularly from the perspective of the families who care for a child with cancer. Siblings have reported feeling lost and ignored by parents who are preoccupied with the sick child and who may be absent from home for extended periods of time accompanying a child receiving treatment out of town.
These feelings can lead to behavioural challenges in the siblings left at home 3. In addition to the disruptions of family dynamics, families describe financial hardship associated with caring for a child with cancer.
Another study reported that parents of children with cancer suffered greater financial hardship than did parents of children with other serious illness such as diabetes 8. Barr and Sala 9 reported that few studies have specifically examined the out-of-pocket expenses incurred by families dealing with childhood cancer and other chronic diseases.
A small qualitative Canadian study by Scott—Findlay and Chalmers 10 reported that, among other hardships, families with children who had cancer were required to travel km on average round trip to receive treatment.
The cost of cancer care may be a concern if you or family member has been diagnosed with cancer. Because bills and debt can add up quickly, people may want to seek financial help soon after being diagnosed with cancer. Oncology social workers, case managers, doctors, and oncology nurses can help or provide referrals to support services and financial resources. This page contains information about scholarships for cancer patients, cancer survivors, children of a cancer patient or survivor, students who lost a parent to cancer, and students pursuing careers in cancer treatment. The financial impact of a cancer diagnosis Linda Sharp Aileen Timmons With the support of: particularly vulnerable to the adverse financial effects of a cancer diagnosis, in particular those with dependants and those who are working at the time of diagnosis. This can mean that, for example, the self-employed may decide to keep working, or.
As a result, many people must travel to receive specialized treatments. For example, in New Brunswick, pediatric cancer patients are usually treated out-of-province in either Nova Scotia or Quebec. The php covers all medically necessary physician and hospital costs and the cost of drugs provided in hospital.
Prescription drugs provided outside a hospital setting are not covered by the phps. For cancer patients, these drugs may include oral chemotherapy agents that can be administered at home 12 or supportive drugs such as antiemetics or pain medications given to combat the side effects of treatment.
Provincial drug insurance programs may offset the costs of some of these drugs for low-income families, and both New Brunswick and Newfoundland and Labrador have such programs Out-of-pocket drug expenses may also be cost-shared through private supplemental health insurance programs Blue Cross or Medavie, for example.
Private supplemental medical insurance including a prescription drug plan is often offered as an employment benefit, and individuals can also purchase supplemental health insurance on their own but usually at much higher premiums.
This approach permits researchers to address the uniqueness of the particular situation and to generate a hypothesis or theory All participants signed an informed consent form before commencing their interview.
The parents, if interested, could directly contact the study team for more information and to set up an interview. Participants were also recruited through newspaper articles and other French and English media. In Newfoundland and Labrador, participants were recruited with the assistance of Candlelighters Canada—Newfoundland and Labrador Division, a childhood cancer support foundation.
A notice of invitation was posted in the Candlelighters newsletter, followed by a letter sent to 25 specific families that fit the inclusion criteria.The financial fallout from breast cancer can last years after diagnosis, particularly for those with lymphedema, a common side effect from treatment, causing cumulative and cascading economic consequences for survivors, their families, and society.
This page contains information about scholarships for cancer patients, cancer survivors, children of a cancer patient or survivor, students who lost a parent to cancer, and students pursuing careers in cancer treatment.
Tamoxifen (Nolvadex), a hormone therapy drug, is used to treat breast cancers and to lower risk in women at high risk of breast cancer. Read about Tamoxifen side-effects here. Almost one-third of cancer survivors experience financial hardships as a result of their diagnosis and/or treatment, according to a new study by researchers from Virginia Commonwealth University.
What’s more, these hardships can have long-lasting physical and mental side effects. According to. Recent Cancer Diagnosis. We want to help make these first few days, weeks, or months after being diagnosed with cancer a little easier on you. There’s a lot to learn, so begin with these resources for information about your diagnosis.
Late effects of cancer treatment can cause serious, disabling, and life-threatening chronic health conditions that adversely affect the health of aging childhood cancer survivors. Learn about subsequent neoplasms and the cardiovascular, cognitive, psychosocial, digestive, endocrine, immune, musculoskeletal, reproductive, and urinary late effects of pediatric cancer treatment in this expert.